tag:blogger.com,1999:blog-26950919.post115710859724588544..comments2023-07-06T15:22:26.971+01:00Comments on Hydro active challenge to see off CF: Final test runTinypoppethttp://www.blogger.com/profile/18264261421802702883noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-26950919.post-1157250149894350322006-09-03T03:22:00.000+01:002006-09-03T03:22:00.000+01:00Hi,My name is John Shannon, I'm a moderator at htt...Hi,<BR/>My name is John Shannon, I'm a moderator at http://www.xxytalk.com. <BR/><BR/>We all have klinefelters syndrome, which amongst other things effects our lungs, and breathing. <BR/><BR/>Not to the same extent as CF though.<BR/><BR/>Last year I was literally on death's door with many of the CF type symptoms, much mucus in my lungs that would not go away - on any antibiotics. I had growths in my sinuses - polyps, and I said to my surgeon, I believe that once the polyps are removed, that the infections in my lungs would go away. He did not agree, however - after the surgery, the mucus in my lungs that had plagued me for 5 months went away.<BR/><BR/>Like you I believe that exercise is vital - for good health - along with vitamins & amino acids.<BR/><BR/>I still had breathing problems though that affected sleeping when lying down - its much worse.<BR/><BR/>I have a solution for that too, and perhaps it will help you too and all of you at CF UK.<BR/><BR/>That is to take a small amount of liquorice (mine are small dutch liquorice cats - I got from New Zealand). One or two pieces - last thing at night - clears the lungs.<BR/><BR/>I also cycle every day.<BR/><BR/>You can contact me at john@xxytalk.com<BR/><BR/>Take Care.<BR/><BR/>be the best you can be.<BR/><BR/>John Shannon<BR/>Medical Researcher (US Patents Pending)<BR/>Kirribilli<BR/>Sydney<BR/>Australia<BR/>(a kiwi living in aus)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-26950919.post-1157214038424169202006-09-02T17:20:00.000+01:002006-09-02T17:20:00.000+01:00Emily, best of luck for Sunday. I'll be there runn...Emily, best of luck for Sunday. I'll be there running (well, jogging a bit and walking a lot) for the Mengitis Research Foundation. So if a mad woman in glasses and a purple running vests bounds up and ays hello, that'll be me.<BR/>The way you approach life is humbling, fingers crossed that you get The Call soon, and I hope you and your angels have afantastic day tomorrow.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-26950919.post-1157187842102383352006-09-02T10:04:00.000+01:002006-09-02T10:04:00.000+01:00Being privalged enough to of been present for purc...Being privalged enough to of been present for purchasing of said fairy dress and encouraging the wearing of wings, i too am very excited to see the full outfit. Especially those of us that are teaming beautiful pink winks with bright yellow CF trust t-shirts! Very excited,fingers crossed for the weather!Claire221082https://www.blogger.com/profile/02816201850691170980noreply@blogger.comtag:blogger.com,1999:blog-26950919.post-1157132820047024822006-09-01T18:47:00.000+01:002006-09-01T18:47:00.000+01:00Wow, can't wait to see all that pink! You're going...Wow, can't wait to see all that pink! You're going to be fab on SUnday! xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-26950919.post-1157125096385248642006-09-01T16:38:00.000+01:002006-09-01T16:38:00.000+01:00Yay for dress rehearsals!!! Your outfit sounds fab...Yay for dress rehearsals!!! Your outfit sounds fab. (Much pinker than my poor attempt in Claire's for pink hair bands this morning.)<BR/>Can't wait to see you in full pink finery on Sunday. Keep your strength up and you'll have plenty of time for chatting on the way round, if you need to sleep afterwards then you go get some rest hun!<BR/>The excitement is building!!!!<BR/>Hugs xxxxxxxxAnonymousnoreply@blogger.com